Illinois Gov. JB Pritzker signed an executive order in response to federal efforts to create a database for autism research.

Researchers are responsible for: abiding by the IRB-approved researcher-participant agreement for the collection and protection of research data, and protecting participants from harms that may result ...

Twenty years ago, handling clinical data was a tedious, unorganized process—until REDCap, a “big dumb container,” put in ...

Kennedy Jr. plans to collect the private health records ... The head of the NIH said that while private data will be used for research, it will not be downloaded, and “state-of-the-art ...

Kennedy, Jr., which has upended public health research and the agency's bird ... the Consumer Product Safety Commission will stop collecting data on injuries from motor vehicle crashes ...

Scientists at more than 40 research centers around the country started collecting detailed information about more than 160,000 women, including data about their diets, exercise, medications and ...

Five years after the COVID-19 pandemic first forced schools and colleges into remote learning, researchers, policymakers and higher education leaders may no longer have access to the federal data they ...

Kennedy hired David Geier to lead the research effort in March ... states to formally restrict the mass collection or sharing of autism-related data absent legal or medical necessity.