Eliminating the ACHDNC creates a dangerous vacuum in the nation’s newborn screening system, stalling progress on adding life-saving tests to the RUSP and increasing the risk that diagnoses will ...

Few states have an integrated system of care that allows screening, confirmation, and follow-up to occur seamlessly. Newborn screening involves education of physicians and parents, definitive ...

An ad hoc committee of the National Academies of Sciences, Engineering, and Medicine will examine the current landscape of newborn screening (NBS) systems, processes, and research in the U.S. The ...

The Advisory Committee on Heritable Disorders in Newborns and Children (ACHDNC) was terminated in April. After sweeping cuts ...

Screening can now determine their risk for an ever-growing list of conditions — including ones we can’t do much about.

This newborn screening system relies on public trust. It exists because public health officials agree that the good outweighs the bad — the temporary pain to the newborn and the cost to the parents ...