Sidra Medicine, a member of Qatar Foundation, has established a gene therapy centre to treat rare genetic diseases such as ...
KOCHI: Residents of Cherai are rallying to support two-and-a-half-year-old Adharv, who is suffering from Spinal Muscular ...
The health activists argue that the government is empowered with effective law and policy tools and therefore should ...
Thiruvananthapuram, A registry for rare disease patients in the state will become a reality this year, State Health Minister ...
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The announcement was made at Arab Health 2025 where Sidra Medicine will highlight its international patient service programmes ...
Health activists demand government action to reduce the cost of SMA medicines, citing constitutional obligations and ...
Biogen has announced that the European Medicines Agency (EMA) and US Food and Drug Administration (FDA) have started ...
Application is supported by results from the DEVOTE study, which suggested that two doses of Spinraza (nusinerse) 50 mg taken ...
A man with a muscle-wasting disease is pleased Manitoba is asking a federal agency to reconsider its opposition to a ...
Five more rare diseases have been identified in the country, making the total number of rare diseases reach 456, according to ...