Florida Politics1h
Adam Anderson’s ‘Sunshine Genetics Act’ advances, offering promise for rare disease research and treatment
Ensuring every newborn has access to life-saving screening and treatment is both a moral and economic imperative.' ...
My son’s rare disease diagnosis spurred me to ditch Big Pharma for a biotech startup
Most individuals diagnosed with a rare disease won’t live to become teenagers or adults. I knew what I had to do.
Metro East 6-year-old with rare disease is competing to win an adaptive bike
A rare disease has taken a piece of Aubrey's childhood away from her: the ability to ride a bike. But, a public vote could ...
Hub1h
Scientists design experimental protein booster for rare genetic diseases
Johns Hopkins scientists develop mRNA "booster" as potential new way to treat rare genetic diseases marked by too low levels ...
What Is Hantavirus, the Rare Disease That Killed Betsy Arakawa?
Ms. Arakawa, the wife of the actor Gene Hackman, died from the effects of a disease often caused by contact with droppings ...
Unlocking Answers: Transforming Rare Disease Diagnosis
Our goals are to expand access to genomic testing and develop cutting-edge genomic testing to help more families get answers ...
Remarkable Women: Middletown pastor with rare disease overcomes challenges to lead others
March is Women’s History Month, and News 8 is celebrating some of the remarkable women in Connecticut.
News On 615h
5 takeaways from Cherokee Nation Rare Disease Task Force report
Cherokee Nation Principal Chief Chuck Hoskin Jr signed an executive order in February 2024 establishing a Rare Disease Task ...